Friday, April 26, 2013

Radiation Tribulation


I’m now in my forth week of radiation. For anyone reading this blog facing radiation or supporting a loved one who is undergoing radiation, I offer my take on it.

The center I frequent daily for radiation is far from my house but is really nice. It seems brand new with all the best equipment (which was a tad concerning….need to be sure this isn’t a “plan B” after losing medical privileges in another state, or that this practice is truly brand new and I’m one of a “trial group”). After researching the doctor and learning he has no pending or past malpractice suits (that are findable through Google anyway), it seems that everything is legit.

Meet the staff:
Bubbly Betty—the Medical Assistant, who is happy and far more chatty with me than I wish to be with her.
Ms. Casual—the radiation technician who is funny and lighthearted but a bit too unprofessional at times. Sure, if we met in a coffee shop or at a party, I’d think she was fun. Instead, we’re brought together so she and her colleagues can shoot damaging rays through my chest. So excuse me if I wish she was a tad more focused.
Mr. Serious—the lead radiation technician who is all business. Even when Ms. Casual is going on about tattoos or dancing, and he surely has something to add, he sticks to discussing the somber things at hand, like “fields” and “images” and “alignment”. He’s my favorite because his determined personality summons my trust.
Dr. Pushy—you met him in my last blog. He’s a highly educated, smooth talker with an upright posture that likely impresses many people. Meh.

One of my biggest challenges with all this has been in getting Dr. Pushy to agree to only radiating the areas I’m comfortable with. For the first 6 days, he not only sent rays into my breast and my axilla lymph nodes (both places where cancer cells have been found and likely still remain), but also into my “supraclavicular” space to hit lymph nodes there as a preventative measure. Since no cancer was found in those nodes, and the radiation would damage ½ of my thyroid, possibly my larynx, my vocal cords and my carotid artery in the process—I tried to opt out from the beginning. Being heavy on the preventative reasons to treat that area and light on the negative effects from it, Dr. Insistant McPressure didn’t seem to give me all the info. He definitely seems to hold the attitude that as a physician, he knows best and patients should comply. In the end we agreed to not treat that area and only radiate my breast and axilla nodes. He finally said, “It’s your body, your choice”—where have we heard that before?

The only thing that's missing here is the redness inside the dotted line (this was taken after my first week). 
I'm thinking a new tattooed animal liberation scene might be the best way to 
heal and cover the scars and discolored skin after this is done.

The contraption bed I’m placed in for daily treatments seems somewhat of a medieval punishment. I lay on my back with my hands above my head and head turned; topless. Although they tattooed 5 dots on my torso for alignment, Mr. Serious still must use a blue marker to draw dotted lines around my field. Surely this is enough proof to get me out of a ticket should I get pulled over for speeding to my treatments.

Here you see a picture which I assume someone sketched of me at my daily radiation treatment appointments. 
Uncomfortable "bed", bare-chested and tended to by 4 wizards. Yeah, this must be
how it looks. 


One thing I had difficulty getting used to was the apparent “open door policy” the radiation room has. As I lay in place with my left breast highlighted with an x-ray light and surrounding dotted line, any or all of 4 people (both technicians, the doctor, and the medical physicist—not sure why he needs to check on things right then) will come in and out while the door is open. They’re polite enough, but they could do a better job announcing (or even, dare I say asking) before they enter. I mean, it’s not like I’m undressed—wait, yes it is. This plus my exams each week by the doctor with one of the two medical assistants who work there—tips the scale in favor of staff in this clinic who HAVE seen my breasts. I could have never predicted spending so much time topless with people I don’t know. Surely, this should at least earn me a spot on their Christmas card list. 

Monday, April 8, 2013

Radiation Consideration


The difficult decision to do radiation came after many hours of consideration, research (by me and my amigos), second/third/forth/fifth opinions, and a losing coin toss. 
Just kidding……….it was only 3 opinions.   

I visited a new radiation oncologist a few weeks ago on the recommendation of my traditional oncologist. While I was not impressed with his personality or demeanor, it was this visit that finally convinced me to have radiation treatment. This new doctor is a bit car-salesman-y and gives off an ‘oh, don’t you worry yourself about details; trust me, I’m the doctor’ vibe that I detest. But it’s not his personality I need, it’s his expertise and after all, I do trust him.

Dr. Pushy made me realize that the risks of cancer from the radiation (yeah—aint that a bitch?!) and damage to my heart are minor in comparison to the high risk of the live cancer cells left in my breast tissue forming a tumor again à recurrence. So, radiation it is. 

Here’s a glimpse at my pros & cons list of doing radiation.

Acceptable benefits:
·         Kill remaining cancer cells in my breast tissue and lymph nodes (kill or be killed, right?)
·         Will get everyone off my back about doing more (here’s the real reason, just being honest)
·         Nothing is injected into me (that’s what she said)
·         Treatments are painless (much more than I can say for the animals who were tested on to develop these treatments)
·         Each visit is relatively quick (except when they’re not)
·         I have time to reconnect with the old CD collection in my car (and perfect my in-car solo singing skillz)
·         Yeah, I still have CD’s in my car, whatever (which CD’s however, is likely quite embarrassing and top secret……but those who know me well, know it includes everything put out by Concrete Blonde, Neil Diamond, and Cyndi Lauper)
·         I can work—from home—because I won’t be sick and I have the best manager a girl could ask for in a time like this (seriously, I have an amazing support system at work) 
·         This treatment center—as opposed to a hospital—only does radiation for cancer patients (no fighting for parking in a garage or sharing the waiting area with virus-filled kids)
·         Only mild side effects: fatigue and sun burn-like burns to my skin (yes, there’s parenthetical commentary for each one, so what)


Barely acceptable negatives:
·         The rays will hit 5% of my left lung (not might or could, but will)
·         Damaging ½ my thyroid because Dr. Aggressive is radiating my supraclavicular area that extends to my neck (what the fuck!?)
·         Treatments are daily, Monday through Friday for 6.5 weeks (that’s a lot of time for belting out Forever in Blue Jeans  at the top of my lungs)
·         The radiation center is way south of my house so it’s an hour of just driving each day (and not during a time that my east coast friends can chat)
·         Meeting new people—the center’s staff and other patients (notice which list this is under)


I have had the pre-treatment CT scans, alignment with marks (including 5 tattooed dots—not quite sure how the techs distinguish them from my field of freckles), and a few consultations. I have completed the first of 6 ½ weeks of radiation treatment and so far so good. Only one issue that I need to address tomorrow with the doctor during our standing weekly meet—adjusting his target field to avoid my thyroid—which I’m nervous about. No symptoms from radiation yet. 


This is the machine that delivers the radiation doses. Obviously this isn't me because this person isn't topless. 


There’s so much to share with you all regarding treatment, but that will have to wait for my next post. Thanks for reading!